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Forgetting the victims

THERE is a strong emphasis on the prevention of HIV/ AIDS infection in the community.
That is of course admirable – provided it is not at the expense of those who already have the virus.
Sadly, it still appears that victims of the disease come second in the priorities of the authorities.
Even the deputy director of the National AIDS Council, who has been among the most reliable and approachable of specialist advisers, now refers to the 97% of the population that is not infected and states that “our aim is to protect the 97%”.
While we understand the need to try and stop the infection curve, we are distressed
by the obvious lack of facilities for HIV/AIDS patients.
We urge readers to take a long hard look at the photograph in The National yesterday; it shows part of a ward at Port Moresby General Hospital.
The text tells us that on average 60 beds are presently occupied by HIV/AIDS sufferers.
The NAC forecasts that hospitals in the country will be struggling to look after these patients over the next decade.
That situation has developed through the on-going refusal of authorities to recognise the facts, even when they have been obvious to the rest of the community.
This newspaper has been appealing over many years for dedicated wards to be established in PNG hospitals for HIV/AIDS sufferers.
We have fought tooth and nail for on-going arrangements to be made for the distribution of anti-retroviral drugs to hospitals in this country; available since 1996, they are only now reaching hospitals outside of Port Moresby and Lae.
We don’t doubt the importance and relevance of awareness programmes, nor the sincerity of those involved.
But the slow death of a human being unable to access life-supporting drugs or the
apathy and even antagonism displayed by some medical staff towards HIV/AIDS sufferers seem to us to be matters that need to be immediately addressed.
We are alarmed at what seems to be a trend towards minimising the impact of this disease on our country.
There is an emerging tendency to downplay HIV/AIDS and even to imply that there is a level of exaggeration among those who are engaged in the fight to limit its effects on our people.
That must not happen.
If there has been a levelling-off in the infection figures, we will celebrate more than most.
But let’s see those figures first and above all show us that they are accurate, and not just another in the endless line of guesstimates that have been paraded past the public for more than a decade.
There is nothing alarmist in pointing out that the accuracy of present infection figures, records of those who have died with AIDS, even convincing breakdowns of the gender and provincial origins of victims are at best approximations.
Nor do we underestimate the tremendous difficulties of putting together such statistics.
That’s why we’ve been urging that PNG prepare for a potential influx of HIV/AIDS patients.
That’s why we have begged health authorities to either mark existing wards for HIV/ AIDS patients, if space is available, or petition provincial and national authorities to get such wards built and equipped.
Once again we express our relief at the steady flow of anti-retroviral drugs to provincial hospitals. That is an admirable achievement and one that will eventually extend the lives of thousands of infected people.
At the same time we note that it has come far too late for hundreds, perhaps thousands of our people.
They have died often horrifying deaths without the benefit of drugs and in some cases reviled or ignored by members of the medical community.
The National in no way underestimates the achievements of those who are committed to fighting HIV/AIDS infection through awareness campaigns.
We welcome the very real volunteer efforts of foreigners and increasingly and importantly, of our own people.
Those efforts are indications that PNG is beginning to pull together as a community to fight this disease.
That sense of unity against a common enemy could benefit the wider PNG society in hundreds of constructive ways, and is a splendid effort.
But please – don’t forget those who live with this disease every day of their lives.

 

                                                               

 

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